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Information About Cerebral Palsy

Photo of child

What is cerebral palsy?
Cerebral Palsy is a term used to describe a group of chronic conditions affecting body movement and muscle coordination. It is caused by damage to one or more specific areas of the brain, usually occurring during fetal development; before, during or shortly following birth; or during infancy.

"Cerebral" refers to the brain and "palsy" to muscle weakness or poor coordination which is often but not always a symptom.

Cerebral palsy can be severe, such as total inability to control body movements, or mild, such as a slight speech impairment. Depending upon which areas of the brain have been damaged, one or more of the following may occur:

  • muscle tightness or spasm
  • involuntary movement
  • disturbance in gait and mobility

In addition, the following may occur: abnormal sensation and perception; impairment of sight, hearing or speech; seizures; and mental retardation.

Cerebral palsy is NOT a disease and should never be referred to as such. It is NOT hereditary, communicable, progressive or a primary cause of death.

What are the causes?
A large number of factors can injure the developing brain and produce cerebral palsy. One important cause is an insufficient amount of oxygen reaching the fetal or newborn brain. Oxygen supply can be interrupted by premature separation of the placenta from the wall of the uterus, awkward birth position of the baby, labor that is too long or too abrupt, or interference with circulation in the umbilical cord.

Other known causes are:

  • premature birth
  • low birth weight (often associated with multiple births)
  • RH or A-B-O blood type incompatibility between mother and infant
  • infection of the mother with German measles or other viruses in early pregnancy
  • micro-organisms that attack the infant's central nervous system

Most causes of cerebral palsy are related to the developmental and birth processes. In these cases, the condition is called congenital cerebral palsy. A less common type is acquired cerebral palsy which usually occurs before two years of age and is caused by such external factors as head injury (vehicle accidents, falls, child abuse) or brain infection.

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What are the different types of cerebral palsy?
There are three main types:

  • spastic -- stiff and difficult movement caused by permanently contracted muscles
  • athetoid -- involuntary and uncontrolled movement
  • ataxic -- disturbed sense of balance and depth perception

There may also be a mixture of these types for any individual.

How many people have cerebral palsy?
It is estimated by the Centers for Disease Control in Atlanta that some 400,000 children and adults in the United States have some degree of cerebral palsy. Currently, about 5,000 babies and infants are diagnosed each year. In New York City, as across the country and across disability groups, a powerful self-advocacy movement monitors their rights and quality of life.

In the New York City metropolitan area, an estimated 35,000 individuals have some form of cerebral palsy, including approximately 16,000 children and adults in the five boroughs of New York City.

Can cerebral palsy be managed?
In dealing with cerebral palsy, "management" is a better word than "treatment." Management helps the individual achieve maximum potential in growth and development. The earlier that the condition is identified and a management program undertaken, the better. A management program for a young child includes attention to the child's movement, learning, independent self-help skills, speech, hearing, vision and social and emotional development. Certain medications, surgery, and orthotics may help nerve and muscle coordination and prevent dysfunction.

As an individual matures, additional support services may be offered, such as personal assistance, continuing therapy, educational and vocational training, housing services, counseling, transportation, recreation/leisure programs, employment opportunities, and assistive technology resources.

Many adults with cerebral palsy go to college, have jobs, get married, raise families, and live in homes of their own.

Can cerebral palsy be prevented?
Prevention is increasingly possible today. Pregnant women are tested routinely for the RH factor. If negative, the baby can be given an exchange transfusion after birth and the mother can be immunized to prevent blood incompatibility in a subsequent pregnancy. If a newborn has jaundice, this can be treated by phototherapy in the hospital.

Other programs are directed toward preventing premature birth, reducing exposure of pregnant women to viruses and infections, controlling diabetes, anemia and other nutritional deficiencies, and reducing unnecessary exposure to X-rays, drugs, alcohol, nicotine and medication. Good prenatal care is of great importance to assure a healthy full-term pregnancy.

For more information about cerebral palsy, you may wish to contact United Cerebral Palsy Associations, Inc. at (800) USA-5UCP, or check out their web site at www.ucp.org.

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